Oh how much can happen all in one day!
Two days ago Kim and Grant arrived at our home and yesterday we all headed to TCH for Connor and Grants appointment with our precious Dr. Soep.
Connor got nothing but great news when we were told that we could stop the Cyclosporin (4 less pills to take each day!!!) and that Dr. Soep will talk to the Surgery Department and schedule Connor for his Port removal that might happen in two to three weeks!!!!!!!!!!!!!
This is thrilling news as we were also told that if his blood levels are looking good and steady in two to three weeks then we will also continue tapering the Prednisone :) Truly all of this made me so happy insight as I feel we are looking at our biggest break through yet. Connor will externally look like every other child and the only thing that will stay around are his Methrotrexate Pills (Chemo) once a week and of course the supplements to counteract some Chemo side effects as in Folic Acid, Ergocalciferol, Tums and Multi Vitamin :)
We happily take all that!
Now no visit to any place goes without some excitement of course, and this time was no exception. We had just passed Castle Rock on our way to TCH when Connor squealed he had a spider or bug on his belly. Kim took a look and there was no spider or bug exactly but a yucky Tick. So figuring we were on our way to a hospital we kept going and told him to ignore it. Well if you know Connor that is easier said then done and we had to take the rest of the drive to try and calm down his nerves.
We arrived and the big surprise was that Ticks are not that common a occurrence at the Infusion/Oncology Floor - haha :) It took quiet a bit of work and time to work on a Tick that did not want to let go. So the nurses soaked her in Alcohol, when this did not work they slathered her in Vaseline, still no letting go of Connor's belly. Kim told them to try and use a silver nitrate stick that is used to cauterize and touch the back of the tick with it. Well in the end it was Kim's initiative and taking over the stick and the tweezers that got out this wicked Tick. So you can guess who was Connor's ultimate Hero yesterday!
After our excitement we all went to have some well deserved Gelato followed by meeting Friends of Kim and Grant for dinner at the Yard House who had moved from Chicago to Golden two years ago.
The night ended with some fun play time and even an exercise trip to the Amphibian Theater at the Red Rocks in Golden. What a beautiful place and Conor ran up and down the steps twice! Kim, Alexander and I went once and I am counting this as an exercises as my lungs and heart were given a huge workout :)
Hugs,
R A C A
Two days ago Kim and Grant arrived at our home and yesterday we all headed to TCH for Connor and Grants appointment with our precious Dr. Soep.
Connor got nothing but great news when we were told that we could stop the Cyclosporin (4 less pills to take each day!!!) and that Dr. Soep will talk to the Surgery Department and schedule Connor for his Port removal that might happen in two to three weeks!!!!!!!!!!!!!
This is thrilling news as we were also told that if his blood levels are looking good and steady in two to three weeks then we will also continue tapering the Prednisone :) Truly all of this made me so happy insight as I feel we are looking at our biggest break through yet. Connor will externally look like every other child and the only thing that will stay around are his Methrotrexate Pills (Chemo) once a week and of course the supplements to counteract some Chemo side effects as in Folic Acid, Ergocalciferol, Tums and Multi Vitamin :)
We happily take all that!
Now no visit to any place goes without some excitement of course, and this time was no exception. We had just passed Castle Rock on our way to TCH when Connor squealed he had a spider or bug on his belly. Kim took a look and there was no spider or bug exactly but a yucky Tick. So figuring we were on our way to a hospital we kept going and told him to ignore it. Well if you know Connor that is easier said then done and we had to take the rest of the drive to try and calm down his nerves.
We arrived and the big surprise was that Ticks are not that common a occurrence at the Infusion/Oncology Floor - haha :) It took quiet a bit of work and time to work on a Tick that did not want to let go. So the nurses soaked her in Alcohol, when this did not work they slathered her in Vaseline, still no letting go of Connor's belly. Kim told them to try and use a silver nitrate stick that is used to cauterize and touch the back of the tick with it. Well in the end it was Kim's initiative and taking over the stick and the tweezers that got out this wicked Tick. So you can guess who was Connor's ultimate Hero yesterday!
After our excitement we all went to have some well deserved Gelato followed by meeting Friends of Kim and Grant for dinner at the Yard House who had moved from Chicago to Golden two years ago.
The night ended with some fun play time and even an exercise trip to the Amphibian Theater at the Red Rocks in Golden. What a beautiful place and Conor ran up and down the steps twice! Kim, Alexander and I went once and I am counting this as an exercises as my lungs and heart were given a huge workout :)
Hugs,
R A C A
I love Red Rocks! And I LOVE this news. And EWWWWWW! Ticks!! EEEWWWWWWW!
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