Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Tuesday, September 3, 2013

Connors Bucket List .... by Connor Smith


Hello my name is Connor Smith and I will write a Bucket List today. A bucket list is a list of things I like to do in my life.
1. Write 100 books in my lifetime or more.
2. Stay up and watch a scary movie at 12 am.
3. See the pyramids in Egypt.
4. Go to Pompeii.
5. See a NASA Rocket take off and blast into space.
6. Jump out of an airplane.
7. Paint another Sculptor.
8. See the World.
9. Have a the best life ever.
10. Eat at a Russian Restaurant.
That is my bucket list for the day or should I say my life?
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3 comments:

  1. SusanSeptember 3, 2013 at 6:58 PM

    I just love your bucket list, Connor!!! I hope you accomplish everything you want to do in your lifetime :)

    Love and Hugs,
    Susan (Dominic's Nana)

    ReplyDelete
  2. UnknownSeptember 3, 2013 at 8:15 PM

    Great list! I bet you will do these things! I'll go with you and carry your luggage, ok? Except when you jump out of a plane. Mr. Matt will have to go. I'm too scared! Ha. But watching a scary movie sounds perfect! Will you autograph a book just for me? We miss you and your family! .... Jennie

    ReplyDelete
  3. Lynn CSeptember 4, 2013 at 5:20 AM

    Wow, your bucket list is better than mine, can I come with you?

    ReplyDelete

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