I have been listing things each day on FB throughout November and while it always seems a bit strange in the beginning it is very easy to warm up and then I feel as if I can't stop posting- lol
As to the actual Holiday it really falls in the same pattern we had for years. No Turkey here today as Ron is flying and working as he does most Hollidays and will on Christmas as well. So the boys and I baked cookies, watched movies and just relaxed all day. Funny part is that my husband had a complete Turkey Thanksgiving Dinner on his layover in South America. It is really something to see what efforts Hotels around this world will do to accomadating Americans that are traveling.
For once this has been an AMAZING year for Connor and his battle against JDM! We as a family have proofen once again that we are the best and strongest when faced with pain.
I am so grateful for the people that surround me, my family, my friends. An amazing gift to have support of so many beautiful people. My husband and my boys are the pillars who give me my wings to fly and my friends are the once who make sure I don't fall.
On a more materialistic level how can I not be grateful for the live I am living? To not have one need! Well a CURE for Juvenile Dermatomyositis would fall under a need, but other then this I am living the life of a successful warrior (if you know me I am not really the princess type - lol). Thanks to my husband I have a beautiful family, live in a beautiful house in a beautiful State. I drive wonderful engeineered cars, have all the tech toys I could want and get to travel frequently. I can go out and buy us the foods we love without a second thought. Now I do NOT take any of it for granted and we do try to pay it forward. I like to think we have a great rythem of donating foods, clothing, toys and household items on a monthly basis and I also realize life will not always be this easy. It has been much harder in the past and we do not have the financial stability we used to have prior to JDM. So while the materialistic items are wonderful and fun the are NOT my strength and pillars.... I know if all that goes away tne warrior in me will still be strong!
I learned to surround myself with people that are grounded and supportive and I truly feel blessed. However no life goes without ups and downs and the biggest loss came with the death of my Dad in June. Nothing had me prepared for this cruciating pain and feeling of loss. Never can I put adequately into words how grateful I am to have been his daughter and for having had the greatest Dad I could have been given. His presence in me is strong and I learned that his confidence in me lives on and in a strange way I feel stronger then ever. Ironically when I was faced with one of my worst nightmares, loosing someone I love with all my heart, I also learned that it takes and breaks my heart but it does not destroy me. I miss him and cry more frequently but also bring him back alive in my heart by asking and reacting to situations with his voice in me.
Yesterday Connor had a checkup at The Children's Hospital in Denver/Aurora and the news are wonderful! He will go from 1 ml of Prednisolone to 0.5 ml daily and from 0.9 ML of his Methrotrexate Injection to 0.7 ML each week. He was given the choice of trying the oral version again which he was on prior to his Flare last year but he declined and said he will stay with the injection. How proud I am of both my boys! So much older then their years when it comes to medical dealings but still precious little boys when it comes to believing in magic! The greatest gift of all!
So my request to you if you have not done so this month. Sit down and write down 10 things you are grateful for and see the snowball effect. No, it will not take your pains and worries away but it puts it all in relations to what the choices are......
Hugs,
R A C A
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