Our Journey thru JDM and Life!: The need to read......

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Thursday, January 2, 2014

The need to read......

The fear of running out of 'good' reading material. I read all the time. Well almost all the time as I do sleep, eat and drive places. But here is the sad part, when I am not inhaling a good book that keeps me locked in then I start reading whatever poppes up in front of me, including bad and sad things in the news or on people's walls. Those are the times I feel I need to react and respond. So if you want to hear less of my opinions then for goodness sake keep good book ideas and reading materials coming my way - lol

Truly I think I finally figured out why at times I am very politically embattled on FB and I am more active in writing in my blog and in return why there can be weeks and months I do not write into my blog at all or are more quiet on FB. Looking back it is during all those times that I was either inhaling a book or book series or I was on a dry spell searching and searching for good reading materials. So if books were not filling the void then news clippings, other blogs, peoples postings would suck me in. We all know I like to respond to just about anything ;)

Hugs,

R A C A