Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Friday, June 20, 2014

Colorado Renaissance Festival

One of the most favorite events is happening right now so I want to give it a shout out for all my wonderful Colorado Friends that have not gone to this event yet. 

We are planning on going not this but the following weekend to celebrate my grand daughters 2 year birthday there.

Here is what you can find there:

The Colorado Renaissance Festival, Colorado's premier summertime event, is Celebrating 38 years in a style unique only to those who visit the picturesque mountain venue of Larkspurshire. Patrons take a magical tour through time and legend and enjoy as hundreds of Colorfully costumed characters entertain continuously upon the village streets and on the Festival's 10 stages. More than 200 period artisans sell their one-of-a-kind works and demonstrate their unique crafts along the wooded streets and pathways.



Hugs and hoping you are all having a wonderful summer so far!

R A C A

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