Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Tuesday, October 26, 2010

Subluxated Ribs or popped out Rib Head :'(

I and the boys always love having Ron home no matter what but for the last four days I think even our House would love to have him home.
On Saturday I started feeling a pain in my back and by Monday Morning it was so painful that I loaded up the boys and drove us through some miserable weather to the Chiropractor. Let's just say we left in heavy rain, saw icy rain and drove home in snow.
Anyway, it turns out I popped a rib head or the correct term I have a 'subluxated rib'. Our Chiropractor made a ton of adjustments on me and the boys compared it to sounding like making popcorn. I wish I could say the pain went away but for now it is still very intense and painful and that is why I know our house is suffering. I am barely standing or sitting up and the only part my body likes is laying down. So no laundry, cooking or vacuuming right now - haha. I am glad to have two boys that are very easy in regards to food and for the last two days we had yogurts and puddings for breakfast and soups for lunch and dinner.
I am once again glad for home-schooling because the boys do well with me watching them work on their workbooks and watching the teaching Video's online.

I am now going back to dreaming about pain medication that would work (Hydrocodine is not even cutting it) and I am grateful I am not having visitors right now. It is a good thing for them as well since I be tempted to put them to work for some dusting - haha

Hope your day is more productive then mine.

Hugs,

R A C A

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