Now Connor has been so brave and such a hero when it came to taking all his past treatments, tests and medicines and we know it is hard on him because daily he gags when taking all twelve of his medications but never does he complain or put up a fight. He knows it is what he has to do in order to get better. Now it has been nine months since he has been doing this daily and at this point there is no end in sight.
He could have wished for JDM to disappear of course but to his six year old mind those syringes filled with bitter medicine and the pills he needs to chew are his biggest daily battle.
So,
When you wish upon a star
Makes no difference who you are
Anything your heart desires
Will come to you
If your heart is in your dream
No request is too extreme
When you wish upon a star
As dreamers do
Fate is kind
She brings to those who love
The sweet fulfillment of
Their secret longing
Like a bolt out of the blue
Fate steps in and sees you through
When you wish upon a star
Your dreams come true
Makes no difference who you are
Anything your heart desires
Will come to you
If your heart is in your dream
No request is too extreme
When you wish upon a star
As dreamers do
Fate is kind
She brings to those who love
The sweet fulfillment of
Their secret longing
Like a bolt out of the blue
Fate steps in and sees you through
When you wish upon a star
Your dreams come true
No more Medicine is Connor's Wish and mine is for JDM to become a history. There is so much pain that JDM brings in so many forms to our children and those who love and care for them and I am once again so grateful that we have warriors in the form of amazing Doctors out there fighting the fight on the front lines. Now there is also progress in other strange ways of bringing out the name of Juvenile Dermatomyositis.... Just last week on the show 'House' it was the first name listed when they mentioned Autoimmune Diseases. Who would have thought?
I know the more exposure we can get better it will be.
So Thank You to all my precious family and friends for knowing so much about JDM and also for talking about it.
Hugs,
R A C A
Hugs to you, Anke, and to your precious Connor (& his sweet brother too).
ReplyDeleteBless you, Anke, and give you strength. I cannot even imagine the agony of having a sick child. You are so strong and so beautiful. Both your boys are so lucky to have you for them.
ReplyDeleteMany many hugs to all of you,
Ninnah
Thank You both so much!
ReplyDeleteNinnah, I am thinking of you often and I wish I could help you along your battle. Are you writing a blog? I know it is not for everyone but it has been so good for me to have a place to vent and write what is on my mind and in my heart. Love!