Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Monday, March 21, 2011

Age 6 and LOVING IT!

Since Connor and Alexander will be seven years old soon I want to reflect back on how I would rate this past year from a parenting stand point.
I know there are all the sayings about the 'terrible two's' which never really hit our home. I found age three to be more challenging then age two but still each year was fun and amazing in how much they learned and grew.
However, age 6 will go down as my favorite age so far. The boys have been amazing all along but this year they surprised me in how loving, attentive and caring their really are. If I had one wish to give to my friends and family that don't have kids then it would be a year for them to experience what I did. Not a day goes by when the boys don't tell me how much they love me. We end up in the age old discussion about who loves who more, with me trying to convince them that Mothers and Fathers love can't be trumped but they still demand they love us more. Not a day goes by when they don't color a picture that says I love Mama and has hearts all over it. Not a day goes by when they don't tell me how beautiful I am (usually the moment they say it is when I don't feel that lovely at all), their timing is incredible. I am told how they want to marry me and how they hope to find a wife that will be just like me. I am told I am the most beautiful Mom in this world, to be corrected I am the MOST beautiful woman in this world.
So you see, my wish is for each of my women friends to feel and experience this unconditional love. Now if you are lucky like me with twin boys you get the double dose of it and I am so so happy about this each day :)
Now the other part about age six which i love is their interest in the world and their ability to voice their questions and opinions. Ron and I have two very sweet minds that will watch the news with us and give us their feedback from a child's view. More Adults should listen to this because they have some wisdom which we strangely loose when we get older. Of course we get more critical when we get older ....
So I am ready to see what age seven holds, but I will try to bottle up the memory of this past year to remind myself when the teenage years hit :)

Hugs,

R A C A

1 comment:

  1. You are so very right Anke, the unconditional love of your child is something that every woman should experience. You are so very lucky to have this love twofold. Seven is just as sweet a year, at least it sure was in this household. Now, at 9 years old, Dominic is just as loving and more helpful around the house. They grow up so fast. Enjoy every minute with them :) Hugs to you all!

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