Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Monday, January 16, 2012

Fun Times with Friends ....

I am so happy that the year 2012 is really lining up with some wonderful visitors that are coming to see us in beautiful Colorado.


Ron and I had from the very beginning of our relationship in 1998 the philosophy that a house full of guests is something to be cherished.
In the first year of our marriage we averaged 6 month worth and it kept a steady pace even when we moved to Colorado or even more so because lets face it ... Texas against Colorado? no fair comparison - sorry TX - haha


This year of course we already had Oma and Opa here when we stepped into 2012, and this past weekend we had first time visitors from Chicago. Now we kept this a surprise to the boys who had no clue that some of their favorite people were going to arrive late Friday. They kept wondering why they were allowed to stay up so late when they had such an early morning and long day on the slopes of Breckenridge for their second Snow Boarding Lessons, but their faces were just priceless when they saw the reason why. 
It was a fun weekend for us all and now we are getting ready for a very busy week that will end with the Departure of my Parents. No, I do not want to hand them back to my family in Germany but I guess I was taught to share so have to hand them over ....


We are now looking towards to our next visitors that are arriving from Alaska on February 1 :) Looks like it will be 5 days of fun with the Gracia Family :)


Hope you all had a fun weekend as well and are enjoying the long weekend :)


We are heading bright an early to the Infusion Center tomorrow to have Connor's Port Flushed and Blood taken.













Hugs,


R A C A

2 comments:

  1. LOVED visiting with you all! You are such gracious hosts. We had a wonderful time and really enjoyed Oma and Opa as well. Safe journeys to them this week, and to your next round of visitors. We look forward to your visit in March!

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  2. I am so happy you got to meet Oma and Opa as I always cherish my talks with your Mom. We are both lucky to have such wise parents! See you in March and hoping or your next visit in CO to be longer :) always little selfish me ;)

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