Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Monday, May 21, 2012

Wonderful Alaska Adventures :)

Our trip to Anchorage this weekend was so much fun in every way.

Of course the most wonderful part was spending time with Niki, Harlow and Celeste. We are so lucky to have such a great circle of Family and Friends :)

I have to say another part of this trip that was magic to me was seeing the boys watch their Dad at work. We got some fun pictures of them in the 757 Cockpit and how I wish you could have all seen their proud faces when they listened to Ron on the PA and then to have them mentioned in it as well. I can not count how many times they told people on the plane that their Dad was the Captain and flying this plane and how he was the best Pilot in the WORLD!!!
We also got super lucky to have a most fun Flight Crew! The Flight attendant on this trip rocked and where so much fun. Not to mention they also spoiled the heck out of the boys. They were fed with Cookies and Milk, twice, and also were getting a lot of personalized attention. I have to say I was spoiled as well and it was fun talking to them and sad to see how bad the erosion is between AA and their Employees. AA really dropped the ball when they turned their backs on one of the greatest work forces out there - so very sad!

We arrived late Saturday night but still Niki and Harlow and Celeste took the time to meet us all for dinner. We had so much fun catching up that we did not get to bed until 12:30 am our time here. Never less we were up and running early in the morning with a yummy Alaskan Breakfast and a fun trip to the Market where we met Niki and Harlow again. May I mention we bought some very yummy pastries at a Russian Bakery Stand and even got to practice some of the boys and mine Russian? Not that we know much but enough to say it was all very tasty, Thank You and Goodbye - haha. We also picked up some Red Velvet Cake Pops for the Crew as a Thank You for their excellent Service. After a couple of hours Ron had to head back to get some sleep for the Allnighter home so after the Market the boys and I were dropped of at the Anchorage Museum by Niki. We went to this Museum two years ago and loved the Discovery Center plus all the exhibits about Alaska's History. Of course the older the boys get the more they take in which I love!
After the Museum we found us a little Mexican Place for lunch and then headed for a beautiful walk through a Cemetery that was located next to the Hotel. So peaceful and educational as well as they had a section where the original Pioneers were buried. I know some of you will think my fascination with Cemeteries to be very strange but i love them. It feels like you are walking back into History with each Grave having a story and the peace and quiet that comes with those places is very calming to me :)

After this we went to wake up Ron and start getting cleaned up and pack up before heading down for Dinner and some more quality time with Niki and Harlow.
Harlow was truly warming up after a each visit and the boys so love and adore her. They seem to be overwhelming Harlow at first but they also got some great smiles and laughter out of her due to their silliness :)

The flight home went very well as we got spoiled and had some comfy First Class service heading to DFW. It took some convincing and talking to but finally I got them both to sleep for about 3 hours each. That was followed with a 2 to 3 hour sit in DFW that Connor used to sleep again and then our short flight HOME.

Needless to say we all got home, had lunch and then passed out and slept for most of the afternoon. I am happy that I did get to wash two loads of laundry and even made a decent dinner tonight with Curried Chicken and Rice.

So tomorrow I am hoping to start a week that will be super busy with School here at home and also getting the house ready for our visitors that will arrive on Friday from Germany.
12 Days with two of my favorite Cousins should be a lot of FUN :)

Hope your Summer is starting out well and I am happy to say that Ron will be flying only Anchorage Trips again next month. Maybe I can still convince everyone that a road trip to Alaska should be in our June plans ;)



Hugs,





















R A C A

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