Our Journey thru JDM and Life!: Happy 4th of July!

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Wednesday, July 4, 2012

Happy 4th of July!

My boys love this Holiday as it involves remembering their favorite President 'George Washington'.

This year Colorado and many other States will not have Fireworks today due to the very high Fire Danger and no one I know minds this at all as no tradition is that important to risk any more lives or properties, not to mention we truly do not want to loose any more of our beautiful Forest either.

I admit I also resorted to bribery today as I did not feel the need to even leave the house to join into any 4th of July Festivities. For the last two days I have been feeling extremely tired and the thought of staying home and being lazy (and napping) felt much more enticing to me. So what do you do when you have two boys who woke up and got dressed to the nines, wanting to go to see a Parade? You ask them if they want to go out or rather have a day with movies in bed and have a big bowl of Ice Cream for lunch?
Let's just say they are on movie #3 and each had a huge bowl of Ice Cream as did all the Adults :)
Win, Win for me and I hope no one things we are not Patriotic enough.

Hope your day went well and you all did something fun!