Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Thursday, January 31, 2013

'Asthma' update ....

I admit I was getting very discouraged about the effect the Inhalers had on Connor and his cough as his cough is still there BUT it does seem less to me.
I said I was going to wait one week and then contact the Doctors Office BUT thanks to my precious friends (Monica & Kim) I was informed it can take up to two weeks to see improvements, so I do feel his cough is getting less and we are just now at the one week mark :)

In every other regard the boys are doing great and school is going smoothly, thanks to my friends (Sonya & Heidi's Timer idea) :) We were able to Ski/Snowboard two days ago and this brought a lot of joy and happiness to all of us :)

We are also one week into my Juicing Adventure and I am proud to say that Connor is as excited about this as I am. We have been making one to two juices each day from any kind of mixtures ... Apple, Pears, Oranges, Kale, Lettuces like Spinach, Sweet Potato, Carrots, Ginger, Radishes, Lemons, Limes Cabbages, Tomato's ....
Both Connor and I feel more energetic and better all around. I also started to cut out Pasta, Rice, White Potatoes, Breads and meats. Not easy but not as hard as I thought ;)
Also no more Soda's and Coffee for now BUT I am not going to cut out everything forever. I want to balance my intake to have two or three 'treats' a week but the majority of what goes in my body I want to be unprocessed and 'real' food.
I hope I can stay on track and the juicer truly helps a lot on this new adventure ;)
We also added a 'Biggest Looser' Program here at home for the boys and I. We each take turns to be the 'Coach' each afternoon and work out together. I have to tell you the boys are hard Coaches and I am exhausted each and every time! - lol ;)

I have to finish on a very sad and heartbreaking note however. Rick Thomas, who I mentioned in an earlier Blog Post, passed away yesterday.
42 years old, at the top of his game and a father to three young children. Damn you Cancer! .... I can not express it any other way as it robs us of people that should NOT die yet.

Hugs,

R A C A

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