There are those moments that just pull on my heart and Connor has done this all day long....
Connor had a fairly good day but was starting to feel yucky tonight. Maybe taking him out of the house to pick up the prescription was not the best idea after all...
His fever was up again tonight but what was really hard for him was bis coughing. He coughs snd coughs and he just looks so small and tiny sitting in his 'Sick Room' all day.
The boys take such great joy of being allowed to sleep in Mama and Papas bed when Ron is out of town that I was worried Connor would feel bad for being quarantined in the Guest Bedroom but being such a great patient who truly does what I tell him, he just snuggled down in the sick bed and never complained once in the last two days.
How lucky I am to have a son who hates being sick all the time and cries about it at times BUT NEVER fusses when told what needs to be done to get him better.
So this is for my oldest son who is sick more days then he is healthy but who keeps fighting and pushing on!
Both my dumplings loved watching the Wedding of Rebekah and Ramone online while snacking on Cake. How grateful we are that Technology makes it all possible to be a part f an Event even when we were so many miles away....
So Congratulations Mr. & Mrs. Lowery!
Hugs,
R A C A
Connor, the oldest of our 9 year old twin boys was diagnosed on 11 January 2010 with Dermatomyositis. This blog was created for our family and friends to follow along on our journey to get him into remission and our fight to find a Cure. However, by now this blog has turned into more then just Connor's fight with JDM but also about our Life in general,which now includes a Diagnosis of ADHD for our Baby Boy, Connor's identical Twin Brother, Alexander.
Timeline from first symptom to diagnosis
Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...
Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009
X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy
There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.
The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-
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