Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Wednesday, March 13, 2013

Carmen & Klaudia Update ...

I am having some good news coming from Germany and some more sad news ...

Carmen is doing well at the Rehab Clinic and she was fairly surprised to see how many people there where around her age. As shocking as this is it is also good news as she told me she has fun being around people her own age...

Klaudia is out of her Coma! They also just removed her feeding tube and the breathing tube. As of now she is finally out of danger and they consider her stable!

Sadly the Mom of one of my childhood friends and a neighbor of ours in Germany just had a Stroke and one of my sisters best friends was just diagnosed with Breast Cancer. So while the circle is moving out of our immediate Family it is still mentally hard to understand what is going on around us....

We here in Colorado are doing great and the boys just started 3rd Grade. We are now on day two and all three of us are getting used to a whole new curriculum setup. All my Guide work is online now as before I had a book to guide the boys. The boys miss their friends from Midlandia but we are very excited to move on :)
Connor is battling a head cold but that is nothing we are worried about and we are loving this beautiful Spring Weather here in Colorado. GORGEOUS!

Hugs,

R A C A

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