Our Journey thru JDM and Life!: Great Wolf Lodge with the Tossell Family :)

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Saturday, March 2, 2013

Great Wolf Lodge with the Tossell Family :)

With all that has been going on in my Family it was a great escape to have had planned a trip to Texas to celebrate C & A's favorite twin boys 9th Birthday :)

We were thrilled to be able to accompany the Tossell Family to the Great Wolf Lodge in Grapevine Texas for one night. 48 hours of pure fun, joy and laughter.
I am not kidding when I tell you that one of the best therapies for me is to watch those four boys, Dylan, Ryan, Connor and Alexander play, laugh and run around together. 9 and 8 years of age and they were still holding hands at times.... Friends now for over 7 years :)

Of course for me it was a huge treat as I got to spend time with my little 'sister' Heidi and her husband David. Great Company, yummy food and snacks plus a very challenging workout for two days in a row made it truly the perfect getaway :)

As in workout I count the close to 8 hours we spend at the Indoor Water Park. All five of us went on pretty much every slide and to walk to the top of the two biggest slides was 110 steps/ We did this over and over again so I add this adventure to my workout goals....

I really hope we can make this a yearly event.