Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Saturday, July 27, 2013

When a Parent dies...

No I am not in a slump today but I have been reading a very fascinating book/magazine that revolves all around death. The stories and reports are mesmerizing and one of them pulled me in as to why the passing and death of a parent or parents is so hard.

We are looking at mile stones in regards to growing up and becoming 'Adults', but it is not the coming of age, moving into our first home or buying a house. It is not the part of starting our own Families and having kids of our own... No, through all this we are still children in our own eyes and to those of our parents.
When your parents pass you finally are hit with the fact that you are now not a child anymore as the one you looked up to is now gone. So to many of us the feeling of being truly pushed into Adulthood comes when your parents are dead and you can not switch into the role of a child and go to them for advice, rely on them to have the answers, and rely on them for that unconditional love.

So while I lost the unconditional love and support of my Dad, I am so grateful to still have my Mom as I am NOT ready to loose my Childhood yet. I still want to be someone's child!

Hugs,

A
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1 comment:

  1. KLPMillerJuly 27, 2013 at 8:29 AM

    Beautiful post Anke- and how true! Brought tears to my eyes...Hugs to you.

    ReplyDelete

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