Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Tuesday, July 23, 2013

Chicago Rock n Roll Marathon

So I am taking the easy route right now and will add my beloved friend Monica's Blog in here about some of the events from her perspective by running the Mini Marathon with Alexander....

http://thechubbygirl8partmarathon.blogspot.com/2013/07/inspired-and-excited.html?spref=fb


I ran it with Connor who completely amazed me as well. He said he wanted to try and run the race and his competitive being pulled through on each step he took. First his motivator was the fact he wanted this CureJM race to be his race and get through the finish line before his brother. The second push came by our fellow CureJM runners because each time Connor saw a bright yellow shirt he picked up his pace again as be wanted to pass as many as possible. It made me laugh how he would speed up to pass and then once he got passed them start walking for a while only to have to pass them again ;) the last 100 meters he took of as a sprinter that even I could not keep up with and he pulled off this race with a 13 min mile average!!! Take that JDM!

To read about Alexander's accomplishments which were just as amazing and inspiring you need to read Monica's blog. If you are inspired to start running or walking then please keep reading her blog as she truly is a motivator all around!

Pictures will follow once we get back home!

Hugs,

RACA 

http://thechubbygirl8partmarathon.blogspot.com/2013/07/inspired-and-excited.html?spref=fb

The CureJM Team!

Me and my hero Alex running!

Me, Alex, Connor and Anne!  This is the first picture in a LONG time I like how I look!  Loving watching the transformation in over the last 3 months since I started this journey!



I may be in that sea of people......  Likely the clump of VERY bright shirts at the start line on the far left side of the picture....



Me and Anke at breakfast.  I am always so impressed by how well she manages everything and has raised two of the politest and kindest young men!  Their compassion is amazing especially considering the medical issues and all.






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