Our Journey thru JDM and Life!: How are you?

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Monday, February 24, 2014

How are you?

Laughing that I am coming back to a post I did a long time ago. I used to be fascinated about the phrase here in the USA where you automatically ask someone how they are when you meet them.

I find it was a strange custom as of course we expect to hear 'Thank you I am fine and how are you?'

We are not prepared to hear any real feelings or heaven forget to be told life is miserable!

Here is my laugh for today. This am I went to the store to buy some dog food and while I was finishing up at the checkout, the girl working asked the gentleman behind me how he was. He said 'Well I think I have a Cold.'. Now that statement almost had me jump three feet away from him, by pure reflex - lol, and I was wondering while I rushed out and away from his possible germs that poor girl at the checkout must be really glad she asked him that question ;)

Truly, here was a guy who answered truthfully but neither I nor the girl really wanted to know. Is it sad he has a cold, yes, but trust me unless you are family it is better to keep that to yourself as we are a society that does not like a proximity to known germs. Unknown and all is well - lol.

So, How are You today?

I am fine, and loved my giggle of the day.

Hugs,

RACA