Now the headline is lots of names that made no sense to me at first other then the words from Dr. Matt Bershinsky, that Connors feet are very messed up. He said there are so many things wrong that there is no brace or therapy that can correct it.
Now here is the part that I once again fall back into the 'it is my fault' line of thinking…
When Connor got sick his legs were the first thing to go. His muscles were badly inflamed and were getting tighter and tighter. As a kid he always preferred walking on tip toes but once JDM hit he could pretty much only walk on tip toes.
So after he got out of the Hospital in late March 2010 (after the 8 weeks in the Hospital), he started PT, OT and Speech Therapy. For his legs and feet he had regular PT, he had Hippo Therapy and Water Therapy. In 2012 both his feet were put into casts to stretch his Foot muscles and straighten his ankles. He spend 6 weeks in them and while there was some improvements it did not last long and just a while after he was back with his feet turned out and on tip toes.
Now we are looking back at 4 years of therapy for his legs and feet, NOT once was an x-ray taken as it was always 'assumed' it was a muscle issue.
On top of this was the stress of the Therapist getting frustrated with Connor and I, as after a few months they thought we were not putting in the work at home. We did do the exercises, maybe bot as religiously as we could have. He had three different braces, that he hated, but that we made him wear.
So what was I told today when he had x-rays taken and the Orthopedic Surgeon came in? His bones in his feet and his Ankles are not aligned with his knees to an extreme that he can not point his feet straight forward without pain. His feet are collapsing in due to the turn of his feet. His calf muscle is so tight he can not get his feet down without pain. So simply said he told us that no brace or therapy could ever correct this. He needs surgery in both feet. The damage is so big that they can't do both feet at one time so we will start with his more sever impacted foot which is the right foot. The first surgery will be set for either April 2 or 9, he will be in a cast for 8 weeks.
The good news is that the Surgeon is confident that he will run and walk so much better. They will cut the calf muscle as well so he will have a great stretch in his legs.
All in all this is not what we wanted to hear but Connor took it in strides…. I thought we were done with medical stuff and hence I am kind of feeling sick right now.
Here is what I never mentioned in this blog. In my whole life I was always very proud of being healthy. I only went to doctors for checkups and even those I hated. I took and still take pride that I have no health issues worth mentioning and hence only went to a Doctor once last year and have not taken one prescription drug at all last year. The Motrin I used to take for headaches I illuminated last year by starting to juice. No more headaches.
So here you have a Mom who hates anything medical but who hides it well and who bites her tongue and who puts on a smile at every Doctor, Hospital or Therapy visit. I truly can tell you I hate this all more then my son's, who should be more angry at the injustice they have been served then me.
I will not stop or rest until they can enjoy a life that includes health!
Hugs,
R A C A
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