Back to School ... At least it feels like it ...

For the last two days I have tried to read up on JDM and get organized as best as I can. I feel like we as a family are heading back to College. So far we have a journal and a three ring binder that documents Connor's beginning stages to now step by step. Plus of course we have this blog. So I am typing or hand writing all day and trying not to get Carpal Tunnel Syndrome :)

I am happy that Ron is home for a couple of days since this always calms us down. There has been no change for Connor, good or bad as of today. He had a hard time in the car today and we had to stop twice to readjust his sitting position and he told us he wanted a soft booster seat... do they even exist?
And to make our drive from Lake George to Colorado Springs and back complete, Alexander got sick and threw up in the car while we were driving on Interstate 25.....

What really is hard to put into words is the fact that up to now it has always been easy making decisions for us as a family, for one self or even when it comes to raising the boys. Now there is no concrete answer to which path to take and what impact our choice can have to Connor's recovery into remission. The Book 'Myositis and You' has been very informative and it really gives us more and more to think about. We are going to call Dr. Smith tomorrow to talk to him about the treatment plan's mentioned. It seems the key to a way into remission is going after this disease fairly aggressive from the get go.

On a bright note I will have some more work to do and set up a whole wall for all the 'Get Well' Cards Connor has gotten over the last few weeks. As to gifts the boys are receiving as well, they seem to think Christmas is a continues Holiday. I told them that from now on when they are practicing their writing skills it will be in the form of writing 'Thank You' cards and that might last for the rest of the school year - haha