There were no tests at all today and the highlight was seeing the Rainbow therapy dog, Sam, that came to visit the children today. Alexander was able to work with Sam quiet a bit and loved it. Connor did well until the end when he had to go to the bathroom and fell down. He cried and we ended taking him back to the room for more pain meds. We went back to the playroom this afternoon and Alexander played video games again while Connor tried to colored about 10 pictures in a 2 hour time period.
Ron went to Target for some shopping and I will head over to the House soon with Alexander for some Laundry time. We are hoping to find out tomorrow when we can head back home and continue treatments there. One of the reasons for being here is to get the perfect treatment plan that we can implement at a hospital at home. Tomorrow Connor will have some blood work done in the morning as well as Alexander.
More will come later today or tomorrow when we get more news :)
Not much more to report tonight other then Connor asking to go to sleep again at 7 PM. Ron, Alexander and I had some quiet time having dinner (Pizza) at the Parents Lounge and now we are all off to bed.
... there is one up-date... just talked to Ron and even thought Connor asks to go to bed early he does wake up for his 8 PM vital checks and added medicine intake and he does not do well when that happens. Tonight he got very up-set and cried a lot. We are now evaluating that his walking yesterday and then taking him to the play area might have been to much. He probably does not feel as much pain anymore so wants to do things but in the big picture he is still very weak and has hardly any muscle strengh. So will ask the Medical Team tomorrow for some advice....
Hugs,
R A C A
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