Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Wednesday, January 27, 2010

On our way to see Dr. Pachman in Chicago

I am sure we left a lot of you wondering today what was going on...

This will be a little short since we are tired and getting ready for bed. We e-mailed Dr. Pachman last night and got a response within an hour to give her a call this morning. We called at the scheduled time and she said she wanted Connor admitted as soon as possible. We left right away this afternoon from Denver to Chicago and we will be checking into the ER tomorrow morning at 8 AM. Dr. Pachman won't be in tomorrow but her team will look after Connor and she will see him on Friday.
We will keep up dates coming along our journey here in Chicago. The boys keep asking where the wind is :)
Hugs and a good night.
R A C A
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