A truly good morning for Connor all around :) He was a delight to be with from the time he woke up, through all is therapies and even during the 5 hour wait without food and drink for his Sonogram on his Tummy. He only had mood swings today when we had visitors.
First we had another precious visit from Pastor Carlson and his lovely wife and then we had a visit from Mr. Kent, Emma's Dad.
Connor got a little upset at the first visit because he felt he was ignored by me :) and then when it was Mr. Kent visiting he thought he would be the one ignoring us. Funny how he can switch from one behavior to the other without missing a beat. I get the feeling when we do get released we all as a family will need to adjust again to how it is we need to behave around each other AND to see if we can get some manners back into place - ha ha
Connor did have some blood work done today and the Sonogram I mentioned. Dr. Soep told us last weekend that the decision of his release will be made on how well his blood levels turn out this week and the results for today are as following.
CK 55 (down from 80 last week - which is great news)
Von Willebrand 455 (up from 300 last week). This change alone might not put a damper on a possible release but his Sonogram might.....
The pictures taken today show his liver slightly enlarged and dense looking. The blood levels really don't give an conclusive picture but there is a possibility now that his liver is inflamed and this would or could point towards Hepatitis....
We will now talk to someone tomorrow plus he will give some more blood in the morning as well..
So who said it can get bored here in the Hospital? Always something new for sure ...
Right now Connor is very excited to go to the St. Patrick's Day Party here at TCH at 6 PM. We are both sporting something green so no worries for us to get pinched ...
Okay, we are back from the Party and ready for bed. The Party was not what Connor was hoping for as he wanted some music and green food BUT he did get to do some arts and crafts.
Once we got back to the room he complained about a headache and got some more Tylenol. He now had his 7 PM and 8 PM medications and we are hoping that some good sleep will help the two of us.
Tomorrow will be another exciting day for Connor as he has been awarded another Field Trip with his PT and OT Therapist. We are now heading to the Denver Zoo for 3 hours in the morning :) Just like last time I am not sure who is more excited of getting out? Connor or is Mom? :)
Hugs,
R A C A
P.S. Ron took the pictures above tow days ago and 'YES' what you see him eating in one of them is Cheese on Rice Crispies :-O
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