Oh were to start today but with the very best news?
We are cleared to leave for home tomorrow! Blood work came back and I don't have exact numbers but CK levels are down even more and the Von Willebrand has gone back to about 350 from 455. Connor and I dropped of a big stack of prescriptions at the Walgreen's that is located right inside the hospital. This was good news for us since we use Walgreen's in WP so the refills will not be a problem :)
A few adjustments were made on his medications, for one we are going from 29.9 mg of Cyclosporine to 40 mg, and we are going from 400 units twice a day of Ergocalciferal to once a day 2000 units.
Therapy went very well and Connor was in great Spirits all around. Ron came in around eleven thirty today with some yummy KFC and I got another treat for dinner in the form of Chipotle thanks to my husband :) We will both stay here for the night and even thought everyone here is warning us about the Snow Storm that is suppose to strike Colorado starting at midnight we are not concerned. Who really thinks that snow would stand between us and finally getting home after 51 days? My husband will just show once again his driving skills from being raised no place other then Alaska.
Another highlight for Connor today was a visit from the 'Make a Wish Foundation' who came bearing gifts in the form of a Star Wars Book, Star Wars Flash Cards and a Flash Light. There even was a gift for Alexander, and after Connor shook the package he guessed it as Star Wars Lego. I guess we find out tomorrow if he was right :) The visit was wonderful and Connor was funny when for every question about what he liked Star Wars came in as an answer. It will be interesting to hear what wish will be granted for him :)
The news from Lake George today were a bit on the funny side for me but not so much for my parents. Tasha it seemed came home with a whole leg of a deer in her mouth. This would have shocked me six months ago but by now I have seen so many animal body parts thanks to our dogs that this would not have been to big a concern. However, since my Mom and Dad are still trying to figure out the girls, they were afraid to approach Tasha but also wanted to get rid of the bones. It seemed it took about one hour for them to finally chase Tasha one way so they could dispose of it. I do admit I am not a fan of our dogs finding the left overs from dead animals and for someone that grew up in a city this is still an adjustment...
My Dad, according to my Mom has also been very busy making a Welcome Home Banner for Connor that they want to hang up over the front door entrance. I am sure you will see the end results as a picture on here soon.
So Thank You all for your continuous support. This journey would have been a lonely one if not for all of you that have helped us and been there for us the whole 51 days. I am sure you all could do with a break from this blog :)
Love to all of You!
Hugs,
R A C A
No comments:
Post a Comment