Our Journey thru JDM and Life!: Downtime :)

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Tuesday, June 29, 2010

Downtime :)

May I say that it has been so good to stay home today? It is such a pleasure to enjoy our home when it seems we are back on the go so much lately.

Today Connor and Alexander spend almost all morning and early afternoon outside and they only ventured in for Lemonade or Food. We even treated ourselves to Popsicles between breakfast and lunch. This is were I realized how much fun we Adults loose sight of sometimes when my first thought was 'no' we have some Popsicles this afternoon ... and then my brain went into gear and said 'why not?'. So at 10:30 we sat on the Front Porch enjoying ice cream :)

My husband gave us a highlight this morning with a Skype Call that within a few seconds had as worried about his return home tonight when he mentioned a mechanical and that their Departure might be delayed a couple of hours. The good part came in the form of a phone-call Ron got in his Hotel Room while still talking to us on Skype that the problem was fixed and that he should be leaving soon!

The boys started a new tradition for their Dad which results in Ron having to bring home Taco Bell Dinner (Tinker Bell to the Boys:) and this was in big jeopardy if Ron would have been delayed. This way they now get to see their Dad before going to bed but also have their Taco Bell Mexican Pizza tonight :)

Connor, Alexander and I also enjoyed a wonderful visit from the Morgans this morning and I am very selfish when I tell you that I love having them as bonus Grand Parents to the Boys but also have someone in my life that always listens and comforts but never judges :) Everyone should be this lucky to have friends like this when you don't have family close by!

As to the WorldCup News. Japan lost to Paraguay in a Penalty Shoot Out 3:4 and Spain beat Portugal 1:0. Now I will be an a WorldCup Break until Friday.

Hugs,

R A C A