Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Sunday, June 20, 2010

Happy Fathersday!

I am keeping it short this morning but wanted to wish my husband a most wonderful Fathersday today.
You always know what kind of person you truly are when faced with a challenge!

Everyone can be a good person when life travels a 'normal' path but when facing the challenge of having one son with a disease that has no cure and has been known to be terminal, balancing being a great father to the 'healthy' son, being an attentive husband to your wife while also taking care of your family financially with the added stress of Medical Bill's that just won't stop heading our way then you truly see what a man is made off. I know for a fact that there are many who would not have stepped up the plate but turned away.

So, THANK YOU to my husband for all he has done for us. The boys love and adore you as does your wife and I am so grateful everyday to have a husband that is always there for us and has never let us down....

Love You so much!!!

Connor, Alexander & Anke
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