Our Journey thru JDM and Life!: OT Therapy Evaluation :)

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Monday, June 28, 2010

OT Therapy Evaluation :)

Today at 2 PM Connor had his OT Therapy Evaluation at Memorial and it went extremely well :) Connor loved the girl that did the assessment (Amanda) and she said he was doing well but that she will recommend two different Therapy Sessions as long as Connor's Doctor agrees to it. One will be Water Therapy (YEAH) and the second is called 'Hippotherapy' and that means Horse Riding. This kind of therapy is from Germany and it helps build muscle strength and core body strength plus balance and it would just be perfect for Connor. You should have seen his smile when she mentioned this :) Of course we need a Doctors approval as I mentioned and also the summer session is already filled up due to the high demand but the Therapist will try her best to get him into the fall session :)

My husband also called this morning with the news that he has changed his whole July schedule around and will now be able to go with us to Chicago which is heaven! We should leave on the 6th and be back on the 8th and since we now have the most wonderful Dog and House Sitter truly everything is falling into place :)

As to my World Cup News, which you have to live with right now because I truly am hooked. The Netherlands won against Slovakia 2:1 which was not a big surprise and the Powerhouse of Brazil won 3:0 against Chile. I wish Chile would have won because I think Brazil is just so strong and anyone facing them will have a huge battle on their hands. They are after all the only country that has 5 WorldCup Trophy's to their name :)

Hugs,

R A C A