Our Journey thru JDM and Life!: Family Time...

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Friday, August 20, 2010

Family Time...

It is a good day here for all of us since both my Brother In-Law and my Sister each made their flights today.

I picked up Rainer at 10 AM and will leave in a bit to pick up Beate who will land in C-Springs at 7 PM.

Connor had his Methrotrexate Injection again today and it went really well. I know it makes a huge difference for him to have the Lidocaine Cream on. The little Tube cost us $50 but it is worth it if I thought of the alternative of not having anything to numb his skin.

Connor was laying on the sofa and after I was done he smiled at me and then gave a scream in order to shock Ron and Rainer who were in the Dinning Room. They of course jumped and thought it was the injection hurting him until they heard Connor laugh out loud. What a wicked sense of humor my boys have :)

I also have to say I am slowly growing fond of our Loaner Car which we still have since it now looks like my car won't be ready until Tuesday. The Dealership was send the wrong compressor so when I called today to trade out the cars I was told about the delay. I was rather sad because I do miss my car but then Rainer pointed out that for a few days my car gets a break from me adding any mileage to it :)

As to the Pepsi Refresh, we are holding strong at #2 but need to make sure it stays this way so please do not slow down on your voting! Thank You :)

Wishing all of you a great weekend. We are starting ours with School tomorrow and then Connor and Alexander are excited about going to one of their twin friends Birthday Party. Ron in the meantime is leaving for work again in the early AM and will see Niki and Harlow in Anchorage, AK.

Hugs,

R A C A