Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Saturday, January 22, 2011

A bit Sad but Feeling better :)














I thought I should let you all know that Connor is doing very well and the day after our ER trip you would not have known why we even went through this whole ordeal. Granted, both Connor and Alexander are still carrying Kleenex boxes around and the stuffy noses and the coughing has not left the building yet. Overall, however, they are back to playing Peter Pan and the Lost Boys and are as a matter of fact outdoors right now looking for Neverland. Not sure if they will find it or if it is up to Apple and Tasha to figure out which way through the forest they should go....

The sad part is the fact we wish we were in Texas now celebrating Dylan and Ryan's Birthday today. If you know us well then you know how much my two Dumplings love them and what a close and wonderful friendship they share. I am sad because I was looking forward to seeing two of my best friends and having some Girl time with a Bottle of Wine close by ... oh, well ... we just have to plan another outing. Plus I am excited to know that my boys favorite Girl Friends will be with us in March for Spring Break ... should I make a note here for the Tossell Family that they should head this way as well come March?

So and knowing me we are always going from one thing to another and the next highlight will be tonight when Ron gets home from his trip and will be off for a shocking 5 DAYS!!! One of those days will cover a trip to the Orthopedic Surgeon for Ron to see what we will face about his shoulder and it will include a fun day for the boys with their Papa going to see Yogi Bear.

I also stopped procrastinating in one area and Thanks to the great recommendation of three of my wonderful Mommy Friends here in CO we now have an Appointment for a Pediatrician for both boys on February 3.....

Wishing all of you a fun weekend and hope you can stay away from any cold or flu bugs ...

P.S. the pictures are Peter Pan and one of the Lost Boys, Mega Mind, and at the ER.

Hugs,

R A C A

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