Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Wednesday, November 16, 2011

Bella

So this week it was our precious Bella's turn to have surgery as she got spayed and all her needed shots on Monday. I am happy to say all went well and we were thrilled and happy to have her back home on Tuesday after her spending the night at the Clinic.
The boys were pretty upset about her being gone for one night and there were some tears. Now that she is home and recovering the challenge is from keeping her from jumping and climbing for one week as this is something she loves to do. So for now her home is in a controlled area as in the guest bedroom :)

We also have great news about an upcoming visit from Niki and Harlow. They will come and spend some time with us towards the end of November and if all goes as planned then my parents should be able to see them as well as hopefully they will arrive on the 1st of December.

As far as this week is going it has been as busy as usual and I am looking forward to catching a break next week for Thanksgiving. Have I mentioned yet that we are as good as done with our Christmas Shopping for the boys???? So no matter how many Advertisements enter our home I am done with shopping - I hope.

Oh, and I finally finished my book 'Steve Job's' and highly recommend it if you love Apple. As to me I think I dislike PC's and Microsoft even more now that I read the book and I did not think that was possible - haha.

Hugs,

R A C A

No comments:

Post a Comment