Our Journey thru JDM and Life!: Snow Day, Nov 2, 2011

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Wednesday, November 2, 2011

Snow Day, Nov 2, 2011

So last week we had our first Snow for this Winter Season (yes, we somewhat skipped Autumn :) and the School District delayed the start by two hours but today we woke up to 5 inches and I was greeted by an e-mail and txt message that the whole School District was closed. This was really great news for me for several reason's. One it gave us time to relax and catch up on school at home, two it got us all outside for some fun in the snow, right after we finished school and last but not least I did not have to drive my car to WP. Timing as always is very interesting as Ron scheduled a maintenance service plus a tire change last week. The day for all this to happen was today so Ron took the car to C-Springs very early this am and of course the roads were not the best. I would have cancelled the appointment but Ron is much more comfortable driving in snow on Mountain roads so off he went.
This afternoon the roads were clear and I am very happy about this as Connor and I are heading to Denver early tomorrow morning for his Infusions, of course now that I have wonderful new Winter Tires on my car snow should not be an issue ;) Plus I look forward to my Date with my oldest son tomorrow ... The movie Puss in Boots is on the menu :)

Hugs,