Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Sunday, December 25, 2011

Christmas - Weihnachten 2011

A very merry Christmas to all of you and I hope it was and is all you hoped it would be!

I have to say that this year might be my favorite Christmas with the boys over all. The age they are at, 7, is just the perfect combination of still being young enough to believe in the Christmas magic but also old enough to understand more what it is all about.

In addition to this we are so so so happy to have my parents here with us this year and Colorado showed and delivered it's best side yet with the picture perfect setting of fresh powdery snow that arrived a couple of days ago and then set the setting today with clear blue skies. Picture perfect. We have been outside sledding yesterday and today and it was so lovely all around.

The gifts were plenty as well and I think we all got spoiled more then we should have but Christmas only happens once a year and the laughter and joy all the gifts brought were so worth it.

I have to point out Connor, who due to Make A Wish was able to 'buy' presents for 6 people in the beginning of December. Every gift he picked out was so to the point and picked out with so much thought. Each one was a hit, from a Football for Alexander, to Necklaces and Earrings for my Mom and I, Gloves for Opa and a Beer Stein, Cards and Snacks for his Papa He also got a gift for his Aunty Sam but since we are not sure she opened it yet I am not going to mention it. My Necklace is a Key as in a key to his heart ... very touching and a very precious gift to me!






Hugs,

R A C A


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