Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Monday, December 19, 2011

A White Christmas? --- it is looking good!

So today we had the pleasure to drive up and down the mountain twice due to an am and an pm Doctor Appointment.
It also started snowing this morning so we knew we would be in for some possibly interesting driving conditions. As it happens we saw quiet a bit of snow but very powdery so no real impact on driving through it at all. Unfortunately other drivers were not the same opinion and drove much slower then I thought was necessary ;) ... however today I took a deep breath and just went with the flow and focused on how grateful I am to have a most wonderful car with four wheel drive and the perfect winter tires to go with it :) plus it was very picturest to listen to Christmas Songs and watching the snow fall around us.

I truly love Colorado in the summer the most but the charm this State can deliver during the Christmas Season is hard to beat. I at times feel we are living in a Postcard setting with the snowy mountains around us and the house being surrounded by Pine Tree's plus of course the Fireplace burning. The boys were out playing in the snow this afternoon followed by Hot Chocolate with marshmallows and my Mom was baking two new Christmas Cookies. Can you just imagine the wonderful feeling of coming in from outside smelling fresh baked cookies and the picking up a book and sit by the Fireplace to rest a bit?
We truly are lucky and there are many times I have to remind myself of all this when worries take over....

Hope this last week before Christmas is a calm one for you! We have two more days of school ahead including the Class Party along with two Christmas Plays.
We have been taking some downtime watching Christmas Movies and the boys are in love with the 'Home Alone' series. Even my mom laughs out loud watching them :) .. and NO! I am not catering to the boys wish to leave them Home Alone for a while ... - haha








Hugs,

R A C A

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