Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Sunday, December 18, 2011

Closed for Bussiness...

So we are officially all under quarantine here at home due to this very mean stomach virus that has attackt our family. Connor went down first, followed by my Mom and Alexander. All of them are doing better now and we thought we were in the clear until yesterday when it first hit my Dad and them me ... So all our plans for this weekend is us sitting on the sofa and keeping up the hope that we might be able to loose some weight during the Christmas Season. So maybe all the peace and quiet I wanted for the Christmas Season came to us in the form of a virus since now we truly are not feeling guilty at all about sitting on the sofa or laying in bed watching TV, movies, read or nap. It was a tad sad that the boys missed out on their last day in German School for the year. We are so grateful to Frau Steinbach who has a true gift for teaching the boys and their German is truly picking up more speed. Of course having total immersion with Oma and Opa is helping a lot as well. Wishing all of you a great week leading up to Christmas. I am so happy to have my parents here with us and the true magical age of the boys, who at age 7 are still believing in the magic of Christmas, Nikolaus/Santa and the Christmas Child. Hugs, R A C A
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