Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Saturday, March 3, 2012

Looking at the First Grade Curriculum Finish Line :)

We are so happy to be able to stay home this weekend! The boys as of now have  two more reading tests each and then it is 'Goodbye' to our Little Lincoln First Grade Curriculum :)
This is very exciting and I am so proud of the progress the boys have made so far in catching up from the year we lost.

I had to laugh today when at lunch I asked Alexander if he was done eating and he looked me in the eye and said with his best Jamaican Accent 'Ya Man'. Connor looked at him all shocked and said 'Alex, you can't talk like this to Mama, we only talk like this to Papa!!!'. Cute! I actually like the Jamaican Accents they use but I admit I don't like it when they try to use some weird Street talk as they seem to pick up here and there when we are about. Remind me again that they are just 7!, well 8 in one month :)

I did have a really bad nightmare the other day and I am not sure where this came from, as usually my dreams center around current happenings but not so with this one ... at least I hope NOT!
To make it short I dreamt I was summoned with the boys to a highly guarded Military Compound and was told that the Government will take over the education of the whole male children's population in this country. We would all have to hand over our kids and we will get to see them again when they are grown and 'educated' in a Military view point. I of course took offense and broke out of the Compound with three more boys in tow along with my two. The last I remember was crashing through a fence and driving as fast as I could to safely. Not sure where I thought I would find it - haha
Well, I was happy to wake up and realize I am still in control of my dumplings education ... what a sight of relief!

The boys also Graduated from their Snowboarding Program. Eight weeks of fun and they are at a high level 2 to low level 3 at this point. They were thrilled when their Instructor Sparrow treated them all to huge Chocolate Fudge Brownies to end the day. I am so happy with the success of this program and should you consider moving and you have kids I would keep an eye on living in Park County ;)

Hugs,




R A C A

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