Yesterday was a a painful morning with the boys and I having to get up at 6 am to make our Appointment with Dr. Maynard at Iron Horse Pediatrics at 8 am. Even thought Alexander and I have been getting up at 7 am for the last few days, anything before 7 is truly a huge challenge for us :)
The treat for the boys was a breakfast at Sonics and I got my treat at Starbucks which helped lift our spirits ;)
The Appointment itself went very well and and Dr. Maynard was so attentive and took lots of notes that the time flew and we only realized when leaving the Office that we had spend close to 1 1/2 hours in his office.
He had some recommendations for Alexander and told us he will be calling Dr. Soep to talk to her about Connor and also see if we can expand the blood work taken from Connor. He was interest in the Blood pallets for Connor and he also had signed the script for the Orthopedic Braces for Connor.
We left the Appointment feel good to have even more eyes looking into the cause of Connor's latest set backs. I am just having the feeling that JM is the core problem but maybe this virus that set off this flare is still causing more havoc then we like ....
Good news was we were back home by about 11 am and were able to still squeeze in school time and a NAP!!!!
Today is a very excited day for us as the USA Pro Challenge Bike Race is coming past our front door. This Stage goes from Breckenridge to CSprings along HWY 24 so we are having a front row seat :)
Oh, I forgot to mention in regards to Connor we were also inspired by the Miller Family to try out for him to use the Sauna to see if it would help relax his muscles and so far he was in it twice this week. He really likes it and so does Alexander who we hope it might help to relax him some :)
Funny, how things always come full circle. I remember posting over two years ago that the more immobile Connor gets the more Alexander starts moving.
Wishing you all a nice weekend!
Hugs,
R A C A
The treat for the boys was a breakfast at Sonics and I got my treat at Starbucks which helped lift our spirits ;)
The Appointment itself went very well and and Dr. Maynard was so attentive and took lots of notes that the time flew and we only realized when leaving the Office that we had spend close to 1 1/2 hours in his office.
He had some recommendations for Alexander and told us he will be calling Dr. Soep to talk to her about Connor and also see if we can expand the blood work taken from Connor. He was interest in the Blood pallets for Connor and he also had signed the script for the Orthopedic Braces for Connor.
We left the Appointment feel good to have even more eyes looking into the cause of Connor's latest set backs. I am just having the feeling that JM is the core problem but maybe this virus that set off this flare is still causing more havoc then we like ....
Good news was we were back home by about 11 am and were able to still squeeze in school time and a NAP!!!!
Today is a very excited day for us as the USA Pro Challenge Bike Race is coming past our front door. This Stage goes from Breckenridge to CSprings along HWY 24 so we are having a front row seat :)
Oh, I forgot to mention in regards to Connor we were also inspired by the Miller Family to try out for him to use the Sauna to see if it would help relax his muscles and so far he was in it twice this week. He really likes it and so does Alexander who we hope it might help to relax him some :)
Funny, how things always come full circle. I remember posting over two years ago that the more immobile Connor gets the more Alexander starts moving.
Wishing you all a nice weekend!
Hugs,
R A C A
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