I am sad to say that the last two days were also very rough for Connor, so we are now looking back on four solid days of him not doing so well.
I said to my husband this morning that I am looking forward to the Infusion that Connor is scheduled for tomorrow. I felt bad for saying it but I am putting a lot of hope in it.
Interestingly Connor came to me today and said he can't wait for his Infusion and Therapy tomorrow either. So I know he is having a hard time as well with his inability to move and participate with others around him.
Yesterday I did not take the Wheel Chair to school but then regretted it as I had to carry Connor out to the car after school was over.
So today we started out in the Wheel Chair from the very beginning which was a good thing as Connor would hardly even walk once he woke up.
Sweet Alexander was the one helping him again get around this morning.
The cute part about todays school was Connor talking about JDM during Show and Tell, the crazy part about today was finding out tonight that my sweet youngest child decided to go pee behind a bush during recess! When I just asked him if he did he said 'YES' - well one point for honesty! When asked what he was thinking he said 'Well, no one saw me as I peed behind a bush and I had to go, plus I did not pull down my pants at all'. Well, to this I had to reply that of course someone saw him or I would not have been told about it and what exactly he does not understand about NEVER TO PEE IN PUBLIC??? yeichssssss.
Back to Connor, looking back, the Methrotrexate Shot from yesterday morning did not help as I had hoped so we looking forward to this next step.
I let you all know how tomorrow goes! Wish us luck that getting the Steroid Infusion will kick start him getting back on his 'feet' again!
Hugs,
R A C A
I said to my husband this morning that I am looking forward to the Infusion that Connor is scheduled for tomorrow. I felt bad for saying it but I am putting a lot of hope in it.
Interestingly Connor came to me today and said he can't wait for his Infusion and Therapy tomorrow either. So I know he is having a hard time as well with his inability to move and participate with others around him.
Yesterday I did not take the Wheel Chair to school but then regretted it as I had to carry Connor out to the car after school was over.
So today we started out in the Wheel Chair from the very beginning which was a good thing as Connor would hardly even walk once he woke up.
Sweet Alexander was the one helping him again get around this morning.
The cute part about todays school was Connor talking about JDM during Show and Tell, the crazy part about today was finding out tonight that my sweet youngest child decided to go pee behind a bush during recess! When I just asked him if he did he said 'YES' - well one point for honesty! When asked what he was thinking he said 'Well, no one saw me as I peed behind a bush and I had to go, plus I did not pull down my pants at all'. Well, to this I had to reply that of course someone saw him or I would not have been told about it and what exactly he does not understand about NEVER TO PEE IN PUBLIC??? yeichssssss.
Back to Connor, looking back, the Methrotrexate Shot from yesterday morning did not help as I had hoped so we looking forward to this next step.
I let you all know how tomorrow goes! Wish us luck that getting the Steroid Infusion will kick start him getting back on his 'feet' again!
Hugs,
R A C A
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