Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Thursday, September 23, 2010

Positive Thoughts and Prayers needed .....














Can you believe I am writing two nights in a row again?

Well, tonight is important because I just got of the phone with Mr. and Mrs. Morgan and Mrs. Morgan will go into surgery tomorrow morning for Colon Cancer.
Once again if you do follow my blog then you know the Morgan's and how much they mean to me and my family.
I admit I have not been very active in their life's lately and I could say that it was due to us being so busy but that would be a poor excuse because we should never be to busy for people we love.
If you take comfort in praying then please do so because they are both Angels and have been such a support to me through our Journey. I am not confident in my prayers because I think my track record and communications are still to shaky but I will do what I can to help from the ground here.

Today Connor also had Hippo Therapy again and it went really well. We were introduced to a new Pony named 'Posh' and he was as sweet as Blinkers but younger and much more spirited. Connor was laughing at how much Posh pranced around and how fast his trot was. Alexander in the mean time visited all the horses that were in the Stalls waiting for their turn and he gave out Hugs and Kisses all around.
We ended our day with a trip to the little Circus that came to Woodland Park. It was cute for the Adults and had mostly Acrobats in it but the boys thoroughly loved it and especially the Clown was a huge hit with Connor and Alexander. We did get the traditional Cotton Candy and this was the completion of a perfect day for our boys - according to them!

To finish up I want to let my friends from the warmer climates know that Pikes Peak showed itself this morning with a frosting of snow. Fall is here in full swing and it looks like Winter might be just around the corner. All I can say I love the weather right now but I will cherish our days in Miami and in the Bahamas soon! :)

Hugs,

R A C A

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