Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Saturday, November 20, 2010

Connor and Alexander's Protest about a US Law ...

So I have always wondered what is genetic and what is environmental when you are raising your child and today I am once again not sure :)
We studied all week George Washington, Monuments and Buildings in Washington D.C. and learned about the President of the USA. Everything went really well and the boys fell in love with learning more and they have both agreed that some day they will be Presidents of the United States of America. There was a slight discussion about how each wanted it more then the other but they then settled and agreed that they will be Co-Presidents and lead the country together.
WELL ... this bubble took a hit when they watched the last School Video on this subject and were told that to be President you need to be born in the USA. Since our boys were born in beautiful Khabarovsk, Russia, those news did not go over well. They have been protesting all morning and asked me to record them so they could give their voice to this matter. Now I did not coach them at all and all I did is hold the camera :) However, inside I am so proud to see I have children who can get excited about something and are not to shy to speak out about it :)

Hugs,

R A C A

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