Our Journey thru JDM and Life!: Thank You Amerita & Walgreen's :)

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Friday, November 26, 2010

Thank You Amerita & Walgreen's :)

Tonight I want to say a big Thank You to Amerita and Walgreen's who have been just amazing and very supportive of me trying to get all our ducks in a row for Connor's medicine schedule and our trip to Germany.

It really shows how wonderful it is when you get to know people and work with the same ones for almost one year!

First I called Debbie earlier this week at Amerita to see how we could workout the Methrotrexate Injections since I always receive one pre-filled syringe for Connor the day before his injection. The version we get has no preservatives and usually only lasts for 3 to 4 days. The best part was Debbie telling me to not worry and that she will set it up for us to be traveling with two syringes that will fit our timeline.

Then I was so lucky to have my favorite pharmacist at Walgreen's who told me that they can do an Insurance override and refill me the ones that I would run out off while being gone. It helps of course that she is also the Grandma of one of the little boys that goes to Judo with Alexander. Gosh, how much at times it is really helpful to live in a smaller town :)

So, Thanks to those two precious women I am now set with plenty of Medications to carry Connor into the middle of December. THANK YOU!!!!

Also, I feel bad for not mentioning this sooner but on Tuesday for Connor's infusion we had Lauren as his Nurse, who is a friend of Amy, Connor's all time favorite Nurse on the 7th Floor. Well, I have to say that Lauren stole our heart as well and Connor was very happy to have yet another nurse who is kind, caring and funny.

So this is once again a week for the women in Connor's and our life's :)

Hugs,

R A C A