Our Journey thru JDM and Life!: Memory ... where does it go?

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Thursday, November 18, 2010

Memory ... where does it go?

So I actually forgot to mention that Dr. Rider also noticed something new on Connor. There has been a battle about a spot behind each ear on Connor that looked like dirt and crust. For about two months now I thought he was just very dirty and I kept trying to wash it off and rub it with a wash cloth with no success. Well, I was wondering to some degree about why Alexander does not have this problem since I bath them together and wash them the same way. Turns out that this is a common occurrence for people who have insulin issues.

Now Dr. Rider ran a blood test for this and the levels looked good so we are thinking that he had some issues but they are now resolved and that's the reason why the spots are actually getting smaller.

So, I was wrong about thinking I was not washing my child right ... no soap or water could have taken care of this. Remember these words if you should ever come across some spots behind your child's ear! He or She might be having some Blood Sugar issues!

Also, I might mention that we were offered four tickets to see a Professional Basketball Game while we were in D.C. and that we went ahead and turned down the offer because we were to tired to go :) Only to us can something like this happen - haha

Have a Good Night!

Hugs,

R A C A