Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Wednesday, May 25, 2011

Rosabell the Bathtub Mouse

Once upon a time ....

.... there was a little Mouse that found it's way into the Bathtub inside a Home in the Forest. For how long she has been in the Bathtub is not so sure but while she was trying to find a way out she was startled by two shrieks. One came from a little boy who was very excited to see her and the other from the boys Mom who did not expect to see a Mouse first thing in the morning sitting in the homes Bathtub.
As it happens there were two little boys living in this house who declared within minutes that they want to keep her forever and had decided to name her 'Rosabell'. Since the Mommy of this Home was not necessarily afraid of a Mouse, she also did not want to get close enough to get her in a box to set her free. Therefor it was decided between the Mom and her boys that they should make Rosabell comfortable until the arrival of the Dad in the afternoon. So in a short amount of time Newspapers were lining the bottom of the Bathtub and a container with Water and a Cracker was added.
Rosabell life therefor was fairly comfortable for the next few hours. She was a bit on the shy side but got used to being observed, even thought she was not to trustful of those two legged visitors.
The end of her stay in the Bathtub came with the arrival from Dad who was brave and had her in a box for her journey to freedom within minutes of seeing her.
Then the expedition to Rosabell's freedom began. She got an exciting ride on a Four Wheeler to the end of the Mountain, close to a fallen over tree stump. There was a little creek within yards and the decision to set her free was made. It was a sad time for those little boys who truly would have loved to have her live in their Bathtub forever.
However, for now the Mom and Dad's wish is that little Rosabell will have a happy life out in Nature and of course will not seek out the Bathtub or their Home again!
Rosabell set out to seek new adventures and of course she lived Happily Ever After.

The End!







1 comment:

  1. Great story Anke! She looks pretty cute in the box, but I agree she would not look very cute in my bathtub or anywhere in my house!

    - Jean

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