Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Sunday, May 22, 2011

... Sunday Mornings

So my lovely husband had promised the boys a few weeks ago a night in our bed along with us all walking up together to watch cartoons in bed.
This by itself was VERY brave of my husband as I think there isn't a King Size Bed large enough to hold four of us, two of who are wiggle worms!
The next obstacle for me was trying to get comfortable with my damaged little knee. Not sure how I was able to go on a Field Day with the boys and my only job was watching them and sitting down on the turf and getting up would leave ME with a twisted knee. Oh, yes, I am 40 now so maybe that could explain it ;) So now my knee is swollen but thanks to my husband, Motrin and Ice it is getting better, and we survived the night and it was fun having a slow Sunday morning :)

The reason I am writing so early today is due to another precious JDM Family being in need of your thoughts today. Their son passed out and is now in the Hospital undergoing an MIRI to look for bleeding in the brain. We are a close knit JDM family but it never less makes us all feel helpless not being close and being able to help. Thanks to the internet we are in each others home almost daily but due to the rare kind of disease we do not have to many of us living in the same state or even country. So Hugs to the Blosser Family in OH!!!

R A C A

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