Our Journey thru JDM and Life!: Home Sweet Home :)

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Tuesday, November 13, 2012

Home Sweet Home :)

What is the best thing to do after you get home from an 11 day vacation in Germany? You wait 4 days and then decide it is time to get on the road again and drive Ron's little Audi A3 from CO to TX....

Ron flew out the day before for a two day trip and the boys and I set out at 3:25 am on Sunday morning for a 12 hour drive to Texas.

We made it to the Red Robin Restaurant in Grapevine, TX, by 5 pm to meet the Tossell Family for dinner!

The best part about this adventure was the fact that the Audi supplied no DVD Players and since the boys had gotten into a bit of trouble for not behaving to well the day before there was also a no no for the use of any electronics like the beloved iPads.

So 12 hours of driving with just old fashioned books, paper and pencils. We did have the Satellite Radio so that was a treat and the one time the boys decided to take a nap was when Mommy decided it was time to listen to some news instead of music - haha

Gosh am I am mean Mommy or what? We;;, I have to say the drive went smoothly and the boys never complained once! Shocking to me! ;)

We had planned to fly back home the next afternoon but Ron talked us into staying one extra night so we were treated to a day 'off' as in going to the movies (Starfall - James Bond) and then Coffee and Cake at my beloved Le Madeline's. Oh how yummy that Sacher Torte was .....

Finish this with a scrumptious dinner at Aspen Creek and you know why I fell into bed with a Food Coma!

We are now home again and back into school mode. I am happy to say that both my dumplings did do school work while we were in Texas but now are catching up on the Videos tonight.

The rest of the week should go fairly normal and then we are looking forward to the home coming of Ron on Friday and the arrival to Colorado by the Tossell Family.

Ask me when I am planning to slow down? probably only when forced to as each time I am on the move I feel more energized. For now at last :)

Hugs,

R A C A