Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Thursday, November 22, 2012

Tossell Family Visit :):):)

The last week was pure fun for my two Dumplings and myself who loved having the Tossell Family here in Colorado :)

Last Saturday we were lucky to have them at the house for lunch and Coffee and Cake so Ron was able to visit as well, and then we tried to squeeze out as much time as possible with the four of them :)
There was the Denver Zoo, Swimming, lot's of time spend eating foods, playground adventures and of course a tour of the Ducky Store ;)
Ron missed out on most of this due to being on Reserve for a second month in a row. He is also battling a bad head cold which I think he caught from our dumplings.

It is of course always sad to see them leave again and the biggest heartbreak seems to be for the four boys. Truly we are lucky to have kept this close bond between all of us considering we have been living in separate States now for 5 years!

Today is Thanksgiving Day and as with all the Holidays, Ron is out flying and the boys and I are in tune of making up our strange and ever changing Holiday Traditions :) Today we all watched the Parade together and then we split up ... Alexander has been busy watching Football in the bedroom, Connor is watching Loony Tunes down stairs and I have been baking Christmas Cookies and Addressing Christmas Cards. Now I am considering taking them to a movie and having Dinner out.

To most of you this might now all sound like a lot of fun but it is to us. A day 'off' where we all can do the things we love is a treasure and we are grateful for the break :)

Wishing all of you a most wonderful Thanksgiving Break!

So much to be thankful for and it has been fun thinking of something we are each grateful for each day for the last 21 days.
I am always the most grateful for my Family, my Friends and the options we have by living in a country where everyone is free! To have access to the medical needs Connor has .... to have the convenience of the Technology that we are able to use each day. For me to be able to speak my mind and not get punished for it.
Those are all gifts that I should never take for granted!



Love to all of You,

R A C A

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