Our Journey thru JDM and Life!: Stubborn Asthmatic Bronchitis :(

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Friday, November 30, 2012

Stubborn Asthmatic Bronchitis :(

So I am now on Day 8 of my starting battle with AB and as much as I tried to will my brain to fight this on our own I had to concede the battle on Tuesday when I did go in to see the doctor.
I just finished round one of Antibiotics and will start round two tomorrow.
This time around I admit that my lungs are successfully ruling my body. I feel as if my whole body is bruised, my breathing is very shallow and the tightening of my airways due to swollen Lymph notes wakes me up about 20 times during the night.

This brings me to the challenge of trying to run a home while this sick. In the old days when I had no family I would have curled up in bed and just slept it off ... Not so when you are taking care of two boys and a husband, who is trying to help me out as best as he can! He is my backup during school hours as my patience and endurance are almost non existent but we can't fall behind so have to push on.
On the day I felt sick the most I was faced with a long day of taking Connor to three Doctor Appointments. The driving part was a nightmare as was sitting in full waiting rooms.

I so hope to shake this and get on top of this before Monday as next week will be very very busy..

So wish me luck!

RACA