Exactly at this time three years ago is when Connor showed his first symptoms of pain and his decline in the ability to walk and move. Then we were still clueless what would be the horrid diagnosis and life sentence for Connor of having to live with a disease that has no Cure and comes with the name of Juvenile Dermatomyositis JDM.
How we thought is was just growing pains at first but then with each passing day the pain in my stomach of knowing something much worse was happening to him.
It took another 4 weeks, that included so many tests and even surgery before we got the official diagnosis on January 11, 2010.
So while maybe that date be better for an anniversary date, to me the anniversary will always be the memory of that first week of December 2009, when in my mind my oldest son lost part of his youth and innocence.
Three years that seem like a lifetime .... How much has changed and how much it has all changed me. The biggest heartbreak for me is still the feeling of helplessness when looking at him and knowing that with all my will power and strength I might still not be a match against JDM. A hard pill to swallow for a Mommy Bear like me but of course that does not mean I will ever give up!!!
No comments:
Post a Comment