Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Saturday, December 8, 2012

Andrew's and Terresa's Wedding Day

Today was the reason why we traveled to the beautiful State of Washington. The celebration of young love and us adding one more family member into the folds of our funny and very crazy family :)

How wonderful it was for me and my men to spend some time with the Hyden Family. We truly do not get enough time to be together so we cherish the few times we do very very much.

Ironically, the last time we all were together at our home was Christmas 2009, the time Connor became so sick. Since then we also had a fun time with them in San Antonio, TX, when Tammy Graduated from Training in the Army :)

Today, my niece and nephew in law, watched their first born child, Andrew, get married to his love Terresa. Gosh how old one feels watching such young and 'innocent' love. Twenty years old and the world ahead of them!
With his twenty years Andrew already served a tour in Afghanistan and most likely has to return next year. Twenty years old, old enough to go to war and get married but not old enough to drink Champagne on your wedding .... Does this not sound crazy to you? Yes, you can read this Germans mind and agree with me that the drinking age needs to be lowered - haha

As to the bride, she is a beautiful and funny girl that fits in with all of us very well :) She got my husbands humor and that tells you a lot right there :)

The wedding itself went of wonderful. Tears and lots of laughter (can't wait to get home and download all the Video I took) and the work of love that went into the preparations was magnificent. Tammy and Gene's daughter, Christina (who will also get married later this month :) baked and put together a most beautiful and yummy Wedding Cake. I was more then impressed - I wish I could post a picture but sadly my memory n this blog is full ...
Tammy and Gene on their part showed me what unconditional love they have for their two kids to truly put so much detail in everything they did. I wish I could have set up a spa weekend for them as they deserve to relax after this past week!
Both of them will be deployed for Afghanistan in January.... So not just did Tammy and Gene transfer from VA to Fort Lewis, WA, a couple of weeks ago but they are also planning two Weddings and then their deployment. Their daughter will enlist into the Army next month so the whole Hyden Family has and will dedicated their life to the Army and this Country.

I am so proud and glad to call them my Family, even if we are all crazy or maybe because of it :)

We will be heading home tomorrow and truly I am so so happy we went on this trip!

Hugs,

R A C A

1 comment:

  1. I love you!! I'm so happy to be a part of this family!!! I'm so happy I got to meet you guys!!! -Terresa

    ReplyDelete