Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips
MRI of his spine
X-ray of his chest
CAT Scan of his brain
CAT Scan of his chest
MRI of his chest
MRI of his hips
Numerous Blood Work
Spinal Tap
and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010
-Juvenile Dermatomyositis (JDM)-

Hope

Hope

Thursday, December 6, 2012

Happy St. Nikolaus Tag!

Today our two Dumplings were worried that St. Nikolaus would not find them as we are traveling so it was with a huge joy to see their eyes light up when they did receive a letter and some treats today! Tonight I had some fun in stuffing Nectarines into their shoes after they went to sleep.

Oh how easy and fun it is to bring joy and laughter to eight year olds. How I wish we kept that magic into Adulthood. I do admit I think I held on to it to some degree as I still love reading novels and books about things and places that are magical and make is dream :) this is why my stories I hand over to the boys come so easily to me ... The Tree Ghosts that live on our mountains, the Halloween Witch and so on....

Today was a lovely day for us here in Washington. We got to visit with Ron's Uncle and Aunt, Jack and Gerry, who are such a lovely couple! The boys took to them so fast and hugged them several times throughout the visit.

We also had some time to let the boys swim in the pool and ended up the day with a delicious dinner at an Irish Pup and then some Gelato and Hot White Chocolate at a Coffee Shop/Wine Bar. DuPont is truly a lovely town and we enjoy walking everywhere and not having to use the car all the time. Of course the weather here is what one can expect for WA ;) rain, rain and more rain... If only CO would get a touch of this we be thrilled! I am truly believing that the 300 days of sunshine we receive each year in CO counterbalances to 300 days of rain they have here! This weather wants me to just lay down and sleep all day.....

So hope you all had a nice St. Nikolaus Tag!

Hugs,

R A C A

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