Our Journey thru JDM and Life!: Cottage School Christmas Plays and Party :)

Timeline from first symptom to diagnosis

Our son Connor was diagnosed with JDM in January of 2010 and here is a bit of a timeline to show you how this diagnosis was reached...

Towards the end of November 2009, Connor mentioned some pain in his right foot. We found a Plantar Wart and began treating it. We went on vacation in Germany were he mentioned a pain in his knee's, to feeling in his own words, pain 'inside his legs'. By the time we got home on December 9, he needed to be carried almost everywhere. By the end of December he was unable to feed himself, dress himself, sit up or down, lay down and of course walk. Here is a list of tests he went through between December 10 to December 28, 2009

X-ray of his Hips

MRI of his spine

X-ray of his chest

CAT Scan of his brain

CAT Scan of his chest

MRI of his chest

MRI of his hips

Numerous Blood Work

Spinal Tap

and we finished with a Muscle Biopsy

There were many speculations of what might be causing Connor so much pain and one of them was Gullian Barre Syndrom (GBS) due to his first symptoms showing up within a few days of his H1N1 Flu Shot.

The final Diagnosis came on January 11, 2010

-Juvenile Dermatomyositis (JDM)-

Friday, December 21, 2012

Cottage School Christmas Plays and Party :)

Today the boys and I had a most wonderful time at the Cottage School Christmas Party.
The entertainment, two Plays, one from Cottage 1 and one from Cottage 2 were delightful, cute and so much fun to watch.
C & A loved connecting with their little friends and I had a beautiful time talking to my Mommie Friends.

Thanks for all of this go to the boys beloved Teacher Mrs. Struble and to my so admired friend,m,Sandy. How I miss not seeing her as much as we did when we were still coming to Cottage School!!!
Now I also want to credit my friends Pippi and Alia who put so much time and help into the class rooms.

This Christmas Season has been very magical so far and it makes me reflect how blessed I am to be surrounded by a wonderful family and the most wonderful friends.

41 years of being on this Earth and I feel so good and my place in this world due to all the love and support I have!

So thank you to all my friends for this gift you have given me. No material things could out match this! Big words from a woman who loves her Apple electronics - lol.

Love and a very Merry Christmas!

Anke